In my never-ending quest for inspiration on the web. First, earlier this year, my stepmom told me about the Oprah Valentine's Day show that featured the young Down Syndrome couple in love. I finally decided to go looking for 'em on the web.
First I found this article, which made me laugh and cry, because EXACTLY! I have obsessed here and there about sex and Kiki. Okay, that's obviously at least 18 years down the line, but that's my point. It's 18 years down the line! As opposed to -- yeah, right. As if. I love this article.
The one thing that bothered me was when she realized this (which actually occurred to me the very first time I heard of Sujeet and Carrie because I? Am a pessimist):
The fact that these two are married is fodder for Oprah. That means this kind of thing never happens. Shit. It’s a sideshow. Carrie and Sujeet’s happily-ever-after is an aberration. An episode of Oprah; a feature in Time magazine.
I searched on, actually hoping to find the video of Oprah's interview, and found this article on Sepia Mutiny. And they point out in their article -- which, by the way, I note that MOST news articles tend NOT to mention -- that things are continuously on the upswing for people with Downs.
Carrie and Sujeet are the first generation of DS individuals to be healthy and functional enough to consider marrying. They’ve benefited from full social assimilation, new therapies, and close medical attention that mitigates the health complications of DS:
Do you know what that means? Do you know what that means? That means if I stay abreast of all the newest treatments and therapies for Kiki, then she has every chance in the world of being in the next generation of DS adults who are fully socialized and where "high-functioning" won't mean "able to dress herself" but actually "able to function normally."
And finally I found Sujeet's site. Well, actually that link goes to his proposal page. It's incredibly romantic -- I mean, it would be if I didn't have this continuing hangup that the Phantom of the Opera is creepy as hell and not romantic in the least itsy teensy little bit. But I will overlook that for the romanticism of the moment.
I don't overlook things like that for just anybody.
In the meantime, should I be doing other things besides encouraging Kiki to stick her toes in her mouth? (It makes her play with her feet; don't be judgmental.)